SICKNESS ANYONE

Class of 1998 Joined : 08 Apr 2008 Posts : 80

Seroquel is a great drug! It helps so many, but has some sketchy problems that can occur, like heart trouble. I let Vanderbilt use me as a test patient, so they can better understand Seroquel and it's long-term and short-term effects. My mother is Schizophrenic and my father is Bi-Polar.

I understand restless leg syndrome. Sometimes, my doctor experiments on me. Anti-psychotics can induce restlessness for days. During this time, you cannot sleep or quit moving. It is mental and physical anguish. I hope Requip helps you out. I used to be on Xanax myself. I took myself off it due to over-use (abuse). I cannot sleep without my Ambien either.

It is hard to believe a medicine gives you an urge to gamble. haha!
It sounds like an excuse to gamble. Maybe the drug companies and the casinos are plotting against us. (conspiracy theory)

Subject: Re: SICKNESS ANYONE Wed May 07, 2008 6:36 pm

David, what do you think of Ambien? I have heard of people sleepwalking a lot.
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Subject: Re: SICKNESS ANYONE Wed May 07, 2008 6:45 pm

I actually used to sleepwalk/talk/kick and even went to pee in the kitchen one time when sleepwalking. I don't think I've ever done it when I've taken an Ambien though. Or at least if I have no one has been there to see me. It knocks me out and I feel so incredibly rested when I wake up in the mornings. I've been on it for a few months, but I only take it if I can get to bed by 11pm. If I take it any later than that, I worry about sleeping through my alarm.

Subject: Re: SICKNESS ANYONE Wed May 07, 2008 7:57 pm

I was also diagnosed with Graves disease at age 24 and had the radio iodine treatment done twice because it did not work the first time, my levels are still jacked up, but i am on synthroid. I was diagnosed with meniere's disease(a disease that causes severe vertigo and ringing in your ears) at 26, after trying lots of different meds the dr. finally did a procedure to completely kill my balance nerve in my left ear which did stop the vertigo but left me 90% deaf in that ear. Overall i prefer the deafness to the vertigo any day of the week.

Class of 1997 Joined : 10 Apr 2008 Posts : 5

I had a mild heart attack in the fall 2006, it was actually at halftime of a football game I was coaching, scared the crap out of me ..... it was the wakeup i needed ... i have lost 25 lbs since then, eating better and exercising more.

Subject: Re: SICKNESS ANYONE Wed May 07, 2008 9:10 pm

Kayla, Avascular Necrosis (the best I understand it) is where the blood vessels in the joint die and blood flow is cut off, then the bone starts to die. It was a freak thing. The Doctors couldn't tell me a reason why it happened. *shrug*

I take Cymbalta and Abilify for my depression and anxiety. Works okay..
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Subject: Re: SICKNESS ANYONE Wed May 07, 2008 9:54 pm

Because of a series of events with my kids we are currently seeing a specialist in Portland to diagnose Osteogenesis Imperfecta (Brittle Bone Disease). My daughter was born with amniotic band syndrome, which left her with just 1 foot. Then when Hunter was 3 months old he broke his leg. DHS came and wouldn't let us leave the hospital with our kids, our Ped was literally throwing up begging them to give her time to figure this out because she knew we didn't abuse our kids. We were run through the ringer, theatened, seperated and questioned. In the end, we left with them late that night because a specialist phoned in from out of town and said that there was a small chance he had this disorder.

I have had 8 broken bones (mostly in elementary school), we have some other random family history factors, and it turns out that OI is a hereditary collogen disorder just like Hannah's ABS. We belive there is a connection. In the end they told us that the test for OI is unreliable and he could test negative and still actually have it, which would put DHS on our backs again. When we save enough money I will travel to the NIH and have the test myself. That may give us some answers for Hunter. So for now we are just waiting and watching and spending evenings scouring the internet for specialists who see a connection between Hannahs ABS and Hunter's break.

It's indescribable stress watching an active 2 year old throw himself off of the couch, always wondering when the next break will be and worrying that DHS will swoop in and claim the need to take my kids. There are so many stories of kids with OI ending up in foster care until they could get a diagnosis. It's really scarry.

Class of 1998 Joined : 09 Apr 2008 Posts : 125

I'm going to accompany Melissa to the doctor on Tuesday, and ask him about these sorts of things. While he's not an endocrinologist, he is PCP for her in Internal Medicine and he also is a nephrology specialists (kidneys and dialysis). He works at three different places, and she sees him in Smyrna (not far from here). I also go to this man's brother, since I only need a PCP.

I have already told her the instructions about when to take it (on first awakening) and not to drink 4 hours before or 1 hour after. I don't think she has been doing that before now, but I can reinforce it with her. She's really a sweet girl. I understand about the goiter (we had to learn about it when I was a Bio major). I showed her a photo of it a Malaysian woman who had it, very pronounced in size.

Subject: Re: SICKNESS ANYONE Thu May 08, 2008 7:54 am

Gosh Skyla I'm really sorry. I know that has to be VERY difficult. My brother has had an experience with DHS it can be very scary. I will pray for your family and hope they are able to find a good diagnosis and a treatment.

Rachael My Mother-in-law also has the inner ear problem. She also had her nerve cut. She does A LOT better now. That can be pretty nasty. I'm glad your doing better!

Subject: Re: SICKNESS ANYONE Thu May 08, 2008 4:15 pm

Holy shit Skyla. I've heard bout the brittle bone deal and it sounds devastating to a happy kid who can't understand why they are limited to doing certain things. I don't pray so I can't do that, but everyone I like usually ends up gaining some of my Irish luck so i'll gladly throw some karma your way.
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The world is going crazy, I am just cutting in line.

Subject: Re: SICKNESS ANYONE Thu May 08, 2008 4:50 pm

Thanks, guys. He obviously isn't at that severe end of the spectrum. Some kids get a break during a diaper change or a handshake, but then play full contact football with no problems. It's an unpredictable disorder. Many never have a break after puberty. With any luck, it will never come up again.

On the Ambien front, my mom takes it and when she does, she says some pretty nutty crap and then doesn't remember the next day. And she sleep walks. She thinks she sleep eats, but I think she's just looking for an excuse. Very Happy

David, tell the truth. You have some pretty crazy sleep walking stories.

Subject: Re: SICKNESS ANYONE Thu May 08, 2008 5:36 pm

Well, I've peed in the kitchen once when I was sleepwalking and my boyfriend at the time found me and had to clean it up in the middle of the night. I opened up the refrigerator door for light and then peed behind the refrigerator then turned around and went back to bed.

Another time, I went into my boyfriends roomates bedroom in the middle of the night. He woke up and freaked out and thought I was some pervert getting off on watching him sleep. I was naked, so I can see it from his side, but I don't remember any of this. Apparently I kept saying that I was trying to find the bathroom. I had walked right past the bathroom into his room and I probably would have peed in his bedroom floor had he not woken up and found me. He steered me to the bathroom where I guess I finally peed and went back to bed.

The next morning all hell broke loose. I ended up breaking up with that guy because he and his friends were convinced that I was a sick pervert.

If I could at least remember doing any of this, I might feel better about the situation, but I don't remember any of it.

I've talked to other sleepwalkers and done some of my own research and it seems that sometimes sleepwalkers have a tendancy to urinate in unusual places.

I try to tell myself that if other people have done it, I can't be that much of a freak.

Subject: Re: SICKNESS ANYONE Thu May 08, 2008 5:58 pm

Allen has a pretty funny piss/sleep walking story he might share.
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The world is going crazy, I am just cutting in line.

Class of 1998 Joined : 08 Apr 2008 Posts : 80

Ambien sometimes makes me forget the night before. I can recall the night after a step-by-step walk through of the night prior.

Subject: Re: SICKNESS ANYONE Fri May 09, 2008 10:37 pm

On Ambien, my mom told an ex fiance of mine that she wanted to dress him up like an elf and me like a goddess and put us in a canoe without paddles and push us into the Cumberland because that way the faries would light our way, ignite our romance, and seal our love in the nether realm for eternity. I was mortified. Believe it or not that was not the demise of the relationship. He should have run off scarred that second. Anyway, my mom has no memory of the event. I wish I could say the same.